Together We Thrive

Rare Youth Revolution is an online magazine for kids and teens living with rare medical conditions. This magazine helps empower youth and their families by sharing real stories and advice straight from other young people who understand what it’s like. 

Check out their wide range of topics:

• Women in RARE: Hear about the unique challenges and triumphs that girls and women face while living with rare conditions.

• Advocacy Corner: Learn how to speak up for yourself and get the care you deserve.

• Letters to My Younger Self: Young adults share what they wish they had known when they were younger and living with a rare disease.

• The World of Work: Get tips on how to transition into adulthood and start your career, even while managing a rare condition.

• Our Voices & Our Voices Kids: Read stories from other youth sharing their personal journeys, struggles, and successes.

• And many more!

Want to share your own story? You can submit your voice to be featured on their blog!

In this 20-minute seminar, Maayan Ziv, a young woman with muscular dystrophy, talks about what she wishes she knew about disability when she was younger. She delves advice on asking for help when you need it, being comfortable with vulnerability, finding your passion, and more. Whether you have a disability or a chronic illness, you will leave this talk feeling empowered.

In this 7-minute TEDxYouth talk, Emily Bonia empowers young chronic illness patients to pave their own path to a successful life. She discusses how her Crohn’s Disease diagnosis impacted her dream career, and the steps she took to find a job that simultaneously accommodated to her medical needs and provided her a sense of fulfillment and joy.

The YouTube channel You Look Okay To Me is run by a young woman living with chronic illness. She makes 5-20 minute video essays discussing a variety of topics, including “The chronic illness guide to working from home”, “Why is it so hard to describe my pain”, and “Things not to say to someone with a chronic illness”. 

She also discusses intersections between being chronically ill and being a person of colour (POC), offering a perspective that is crucial in understanding the experiences of marginalized groups. 
Check out her instagram @youlookokaytome for reels and posts you can relate to!