Together We Thrive

Rare Youth Revolution is an online magazine for kids and teens living with rare medical conditions. This magazine helps empower youth and their families by sharing real stories and advice straight from other young people who understand what it’s like. 

Check out their wide range of topics:

• Women in RARE: Hear about the unique challenges and triumphs that girls and women face while living with rare conditions.

• Advocacy Corner: Learn how to speak up for yourself and get the care you deserve.

• Letters to My Younger Self: Young adults share what they wish they had known when they were younger and living with a rare disease.

• The World of Work: Get tips on how to transition into adulthood and start your career, even while managing a rare condition.

• Our Voices & Our Voices Kids: Read stories from other youth sharing their personal journeys, struggles, and successes.

• And many more!

Want to share your own story? You can submit your voice to be featured on their blog!

Chronic Conundrums is a podcast channel that shares the voices of young people with health conditions. With a total of 8 episodes, they discuss the unique experience of being a kid or teen with chronic health conditions. Topics include hospital admissions, treatment, tackling adulthood, and more!

In this 12-minute video, professional tennis star Venus Williams talks about her journey with Autoimmune Disease. She discusses how to get diagnosed, how to improve symptoms, how illness affects her life, and general advice for anyone dealing with a long-term illness. 

Her story is a reminder that your illness doesn’t define you. You can achieve your dreams if you believe in yourself!

Have you ever wanted to have a friend who understands everything about your medical journey?  If you live in the USA, you can request a free “Medical Mini” stuffy that has the same condition as you. Bring your medical mini with you to support you wherever you go!

Fun Fact: Medical Minis was created by a young child with a medical illness, just like you!